Ruth Shinnar, RN, MSN
Disclosures: I/we have no financial relationships to report.
CURRICULUM VITAE

CURRICULUM VITAE


Ruth Shinnar, RN MSN (AKA Christine O’Dell)

 

HOME ADDRESS

140 Taymil Road
New Rochelle, New York 10804
914-636 2231
codell@sprynet.com

 

CURRENT PROFESSIONAL APPOINTMENT & ADDRESS

Clinical Nurse Specialist, Neuroscience

Montefiore Medical Center

Comprehensive Epilepsy Management Center
111 East 210th St., Bronx, NY 10467
718-920-7756



EDUCATION

1971-1974              St. Elizabeth Hospital              RN Diploma
                            School of Nursing
                            Utica, New York

1980-1982              State University of              BS in Nursing

                            New York at Utica/Rome
                            College of Technology
                            Utica, New York

1982-1984              Yale University              MS in Nursing
                            School of Nursing              Medical/Surgical
                            New Haven, Connecticut              Neuroscience

1982-1984              Master’s Thesis, Yale University, “Factors Related to the Functional

                            Ability of Patients with Cerebrovascular Accident”


BOARD CERTIFICATION AND LICENSURE

Registered Nurse, 1974
New York Licensure, 1974   #2680771
California Licensure, 1977
Connecticut Licensure, 1982
Pennsylvania Licensure, 2003
Certified Neuroscience Registered Nurse, 1996

Certified Medical Surgical Clinical Specialist, 1996

 

 

PROFESSIONAL EXPERIENCE

1991-Present              Comprehensive Epilepsy Management Center
                            Montefiore Medical Center
                            Bronx, New York
                            Clinical Nurse Specialist

 

1988-1991              FDR Veterans’ Administration Medical Center
                            Montrose, New York
                            Nursing Instructor

1984-1988              New York University Medical Center
                            New York, New York
                            Nurse Practitioner, 1984-1987
                            Faculty Practice Nurse (part-time), 1987-1988
                            Department of Neurosurgery

1984                             Hebrew Home for the Aged in Riverdale
                            Bronx, New York, Consultant,
                            Rehabilitation Nursing Program Development

 

1982-1983              Veteran’s Administration Medical Center
                            West Haven, Connecticut
                            Staff Nurse (part-time), Stroke Unit

 

1979-1982              Veteran’s Administration Medical Center,
                            Syracuse, New York
                            Charge Nurse, Neurology/Neurosurgery

1977-1979              University of California Davis-Sacramento
                            Medical Center, Sacramento, California
                            (Acting) Head Nurse I/Clinical Nurse II
                            Renal Transplant/Urology Unit

1974-1977              Community Hospital, Syracuse, New York
                            Charge Nurse, General Surgery Unit

AWARDS AND HONORS

 

2009              Claire Chee Award for Excellence, Association of Child Neurology Nurses             

 

1991                             Secretary’s Excellence in Nursing Award, Department of Veteran’s Affairs

 

1991                             Special Advancement for Achievement, FDR VA Hospital, Montrose, NY

 

1982                              BSN cum laude from the State University of New York

 

1981-1982                             President’s List, State University of New York

RESEARCH EXPERIENCE

 

Grants

 

2003 - present              Nurse Coordinator, “Consequences of Prolonged Febrile Seizures in Childhood” PI Shlomo Shinnar MD PhD National Institutes of Neurological Disorders and Stroke, NIH.

 

2016 2017              Nurse Coordinator, "Outcome Measures and Biomarkers Development for Rett Syndrome Multi-site development of standardized assessments for use in clinical trials. Rett Syndrome research Trust. PI Aleksandra Djukic MD PhD

                           

2003 - 2016              Quality of Life Advisor/Nurse Coordinator, “Childhood Absence Epilepsy Rx,PK-PD-Pharmacogenetics” PI Tracy Glauser MD National Institutes of Neurological Disorders and Stroke, NIH.

 

2001 - 2002                   Co-Investigator, “Zonegran Use in Children”. Unrestricted Educational Grant, Elan Pharmaceuticals.

 

1999-2003              Clinical Nurse Specialist “Prognosis of Children with a First Unprovoked Seizure” PI Shlomo Shinnar MD PhD RO1 NS26151 National Institutes of Neurological Disorders and Stroke, NIH.

 

1999-2001                Principal Investigator “Diastat Use in the Hospital and at Home” Unrestricted Educational Grant, Elan Pharmaceuticals.

 

1996-2001              Nurse Coordinator “A Multicenter Study of Epilepsy Surgery” PI Susan Spencer, Yale. Site PI Shlomo Shinnar, Einstein/Montefiore 1RO1 NS32375-10A2  National Institutes of Neurological Disorders and Stroke, NIH.

1996-1999              Co-Investigator. “The epidemiology of family centered stress: deriving a model to treat families of children with brain and spinal cord tumors”, funded by the Children’s Brain Tumor Foundation. PI Katherine Freeman DrPH.

 

1996-1999              Nurse Coordinator “Changes in clearance of antiepileptic drugs during puberty” PI Harriet Kang RFP-NIH-NINDS-96-05.

 

1995 - 1997              Site Principal Investigator “Protocol for the Development of the Quality of Life Inventory for Adolescents”. PI Orrin Devinsky MD.

 

1990                            Co-Investigator. “Reduction of Anxiety through a Staff Support Group”, Aids/HIV Education Demonstration Project funded by the Office of Academic Affairs, Washington, D.C.

 

1985-1987              Nurse Coordinator. ”Dose-escalation study of intravenous nicardipine in patients with aneurismal subarachnoid hemorrhage.” Supported by National Institute of Neurological and Communicative Disorders and Stroke, NIH. NO1-NS-2326, TO2 and NO1-NS-2329, TO1

 

                           
                            Clinical

2009                            Principal Investigator. “Determination of the Adverse Effect Profile for Patients with Infantile Spasms Treated with HP Acthar Gel (ACTH); A Retrospective review”. Sponsor, Questcor Pharmaceuticals.

             

1999-2000               Principal Investigator. “Barriers to Maternal Compliance in Pregnant Women taking Antiepileptic  Medications”.

 

1996-1999              Principal Investigator. “Use of a Dutch Quality of Life Instrument in Parents and Children with Epilepsy”.

 

1995-1997              Co-Investigator. “Evaluation of the Effects of Sodium Valproate Therapy on the Hypothalamus-Pituitary-Gonadal/Axis in Pediatric Patients with Epilepsy”.

 

1995-1997              Co-Investigator. “Free Thyroid Hormone and Thyroid Stimulating Hormone Concentrations in Patients Treated with Phenytoin, Carbamazepine and Carbamazepine/Valproic Acid in Combination”.

 

1989-1990              Principal Investigator. FDR Veteran’s Administration Hospital, Montrose, New York. “Breast self-examination: Factors that influence practice”.

 

1987-1988              Faculty Practice Nurse. New York University Medical Center, Department of Neurosurgery. “Review of Vertebral Hemangiomas: Care and Management”.

 

1985-1986              Nurse Coordinator. New York University Medical Center, Department of Neurosurgery. “Intraoperative Anticonvulsant Protocol”. PI Duncan McBride MD.

 


                           

              Investigational Drug Trials

 

2013-2014                            Nurse Educator. Pharmacological Treatment of Rett Syndrome with Glatiramer Acetate (Copaxone)”. Rett Syndrome research Trust. PI Aleksandra Djukic MD PhD

 

 

2007 -2008              Nurse Coordinator . A double-blind placebo-controlled dose-ranging clinical

Study to evaluate the safety, tolerability, and antiepileptic activity of ganaxolone in the Treatment of patients with infantile spasms. (Protocol 1042-0500).

Marinus Pharmaceuticals.             

                                                                                                 

2007-2008                            Nurse Coordinator. An open label clinical study to evaluate the safety,

tolerability and antiepileptic activity of ganaxolone in the treatment of patients with infantile spasms. (Protocol 1042-0501).  Marinus Pharmaceuticals.                                         

2001-2003                            Nurse Coordinator. Zonegran Use in Children. Elan Pharmaceuticals.

 

1998-2001              Co-investigator. “Efficacy of Tiagabine in the treatment of atonic seizures associated with the Lennox-Gastaut”. Pilot study of safety and efficacy. Abbott Laboratories.

 

1998-1999              Nurse Coordinator. Phase II trial. Pregabalin in patient monotherapy trial: A double-blind positive-controlled, multicenter study in patients with refractory partial epilepsy. Parke-Davis Pharmaceutical Research.

 

1998-1999              Nurse Coordinator. Pregabalin open-label follow-on safety trial in patients with refractory partial epilepsy. Parke-Davis Pharmaceutical Research.

 

1998-1999              Nurse Coordinator. Phase III trial: An open label study of Topamax (topiramate) in subjects with infantile spasms. RW Johnson Pharmaceutical Research Institute.

 

1997-1998              Nurse Coordinator. Phase III trial. An open label safety tolerance and pharmacokinetic study of intravenous and intramuscular fosphenytoin (Cerebyx) in children. Parke-Davis Pharmaceutical Research.

 

1996-1998              Nurse Coordinator. Phase II trial. Multicenter double-blind, placebo-controlled study to evaluate the efficacy and safety of SB204269 as add-on therapy in patients with refractory simple or complex partial seizures. Smith Kline Beecham Pharmaceuticals.

 

1995-1998              Nurse Coordinator. “Oral Vigabatrin (Sabril) Therapyin Children with Uncontrolled Complex Partial Seizures: Dose Response Study”. Hoechst Marion Roussel.

 

1995 - 1997              Nurse Coordinator.Add-On Trial of Oxcarbazepine Tablets in Children with Inadequately-Controlled Partial-Onset Seizures”.

 

1995-1997                   Nurse Coordinator. “Safety and Efficacy of Tiagabine HCL as Adjunctive Treatment and as Monotherapy”.

 

1994-1997              Nurse Coordinator. “Gabapentin Pediatric Monotherapy Trial: Pediatric Patients with Benign Childhood Epilepsy with Centrotemporal Spikes (BECTS)”. Warner Lambert.

 

1992-1994              Nurse Coordinator. “An open label; Long-term safety study of Vigabatrin administered concomitantly with anti-epilepsy drugs or as monotherapy”. Merrell-Dow Pharmaceuticals.

 

1992-1993              Nurse Coordinator. “Safety and efficacy of b.i.d and q.i.d. dosing with Tiagabine HCL versus placebo as adjunctive treatment for complex partial seizures”. Abbott Laboratories.

 

1992-1993              Nurse Coordinator. “Compassionate use of Felbamate in patients with epilepsy”.  Wallace Laboratories.

 

1991-1993              Nurse Coordinator. “Phase III double blind, randomized, placebo-controlled parallel group study of Vigabatrin in patients with uncontrolled complex partial seizures”. Merrell-Dow

                            Pharmaceuticals.

 

PROFESSIONAL ACTIVITIES (Selected)

2019                                      Ad hoc Member, NINDS Common Data Elements, Reviewer

2017              Member, NINDS Common Data Elements Task Force, Quality of Life in Epilepsy

2016 Present              Member, Policy and Procedure Committee, Association of Child Neurology Nurses.

2008 – 2014              Chair, Steering Committee, AES Education Program “Safety in the Epilepsy Monitoring Unit”.                           

2008 -2009              Member, NINDS Common Data Elements Task Force

2000-present              Instructor, Pediatric Neurological Physical Assessment, Critical Care Course, Montefiore Medical Center

1995-present              Member, Institutional Review Board, Montefiore Medical Center

 

1997-2001              Member, Space and Amenities Committee, Family Centered Care Initiative, Montefiore Medical Center.

1999              Panel member, Pediatric Seizure Practice Guidelines, Montefiore Medical Center

 

1997-1999              Member, Seizure First Aid Curriculum Task Force, Epilepsy Foundation of America

 

1991-1996              Nursing Clinical Policy and Procedure Committee, Montefiore Medical Center

 

1992-1999              Epilepsy Society of Southern New York, Board of Directors

Treasurer 1993-1994

                            President 1994-1997

 

 

1997              Member of an invited panel, New York State Department of Health. Institutional Review Boards and guidelines for healthy human subjects.

1996                            Member of an invited Expert Panel, American Association of Neuroscience Nurses, Epilepsy Guidelines, Norfolk, Virginia

 

1988-1991              Nursing Research Committee, FDR VA Hospital, Montrose, NY

 

1988-1991              Nursing Recruitment and Retention Committee, FDR VA Hospital, Montrose NY

 

1989-1991              Intensive Care Committee FDR VA Hospital, Montrose, NY

                           

1989-1991              Joint Practice Committee, FDR VA Hospital, Montrose, NY

 

1989-1991              Secretary, Nurse Professional Standards Board, FDR
VA Hospital, Montrose, NY

 

1989-1991              Co-chair, Nursing Procedure Committee, FDR Veterans                                                         Administration Hospital Montrose, NY


1989                      Item Writer, RN-NCLEX Examination.

1989-1991              Support Group Coordinator, Association for Brain Tumor Research, Westchester County

 

1990-1991              Chair, Hospital Patient Education Committee, FDR VA Hospital, Montrose, NY

 

1990-1991              Chair, Nursing Service Patient Education Committee, FDR VA Hospital, Montrose, NY

 

PROFESSIONAL SOCIETIES

American Association of Neuroscience Nurses

Director, Greater New York Chapter, 1995-1997, 2003

President, Greater New York Chapter, 1999-2000

Nominating Committee Chair, Greater New York Chapter, 2001, 2005 2014

Secretary 2015 -present

Nominating Committee Member, National, 2006 - 2010
Epilepsy Special Interest Group (national)
   
American Epilepsy Society

Education and Professional Development Committee, member 2013 -2015
Chair, Steering Committee, EMU Safety Program, 2008 - 2014

Practice Committee, Chairperson 2008 –2011; member 2005 2012

Student and Resident Education Committee 2000-2002, member
Chair, Nursing/Social Work Needs Assessment Task Force 2001
Nursing Special Interest Group

 

Association of Child Neurology Nurses

President, Board of Directors                            2011-2013
Member, Bylaws Committee
Member, Practice Committee
Chair, Research Committee
Chair, Membership Committee

Epilepsy Foundation (National)

Member, Professional Advisory Board

Epilepsy Institute of New York City/Epilepsy Foundation of Metropolitan NY

Professional Advisory Board

 

New York State Nurses Association

 

 

 

 

 

PUBLICATIONS

 

Original Journal Articles
1. Flamm, ES, Adams HP, Beck DW, Pinto R, Marler JR, Walker MD, Godersky JC, Loftus CM, Biller J, Boarini DJ, O’Dell C, Banwark and Kongable G.

“A Dose Escalation Study of Intravenous Nicardipine in Patients with Recent Subarachnoid Hemorrhage” Journal of Neurosurgery, 1988, 393-400.

 

2. O’Dell, C, Mangin RJ, Leavitt LE, Levine TC, Moloney S, Schwartz, F, Winton R. “Teaching Employees Breast Self Examination: Factors that may influence Practice”
AAOHNJournal, 1991, August 39 (8), 1-7.

 

3. Shinnar S, Berg, AT, Moshe SL, Kang H, O’Dell C, Alemany M, Goldensohn E, and Hauser A. “Discontinuing Antiepileptic Drugs in Children with Epilepsy: A Prospective Study” Annals of Neurology, 1994, May, 35, 534-545.

 

4. Dallam L, Smythe C, Jackson BJ, Krinsky R, O’Dell C, Rooney J, Badillo C, Amella E, Ferrara L, Freeman, K. Pressure ulcer pain: assessment and quantification. Wound Ostomy Continence Nursing, 1995; Sept, 22(5)211-5, disc.217-18.

 

 

6. Shinnar S, Berg AT, Moshe SL, O’Dell C. Newstein D, Kang H, Goldensohn E,   Hauser WA. The risk of seizure recurrence following a first unprovoked afebrile seizure in childhood: An extended follow-up. Pediatrics 1996; 98:216-225.

 

7. Shinnar S, Pellock JM, Moshe SL, Maytal J, O’Dell C, Driscoll SM, Alemany M, Newstein D, DeLorenzo RJ. In whom does status epilepticus occur: Age-related differences in children. Epilepsia 1997; 38:907-914.

 

8. Haut SR, Legatt AD, O’Dell C, Moshe SL, Shinnar S. Seizure lateralization during EEG monitoring in patients with bilateral foci: The cluster effect. Epilepsia 1997; 38:937
940.

 

9. O’Dell C, Lightstone L., Maloney-Lutz K, Clements P, Mancini A, Moshe SL, Shinnar S. Issues related to caring for infants to adults in an integrated epilepsy unit. Journal of
Neurosc. Nrsg; 1998, 30:124-128.

 

10. Ballaban-Gil K, Callahan C, O’Dell C, Pappo M, Moshe SL, Shinnar S. Complications of the ketogenic diet. Epilepsia 1998; 39:744-748.

 

11. Vining EPG, Freeman JM, Ballaban-Gil K, Camfield C, Camfield PR, Holmes GL, Shinnar S, Shuman R, Trevathan E, Wheless JW and the Ketogenic Diet Multicenter Study Group. A multicenter study of the efficacy of the ketogenic diet.

Arch Neurol 1998; 55:1433-1437.

 

12. Shinnar S, O’Dell C, Berg AT. Distribution of epilepsy syndromes in a cohort of children prospectively monitored from the time of their first unprovoked seizure. Epilepsia 1999;40:1378-1383.

 

13. Haut S, Shinnar S, Moshe SL, O’Dell C, Legatt AD. The association between seizure clustering and convulsive status epilepticus in patients with intractable complex partial
seizures. Epilepsia 1999;1832-1834.

 

14. Freeman K, O’Dell C, Meola C. Issues in families of children with brain tumors. Oncology Nursing Forum 2000; 27(5): 843 848.

 

15. Shinnar S, Berg AT, O’Dell C, Newstein D, Moshe SL, Hauser WA. Predictors of multiple seizures in a cohort of children prospectively followed from the time of their first unprovoked seizure. Annals of Neurology 2000; 48(2):140-147.

 

16. Shinnar S, Pellock JM, Berg AT, O’Dell C, Driscoll M, Maytal J, Moshe SL, DeLorenzo R.  Short term outcomes of children with febrile status epilepticus. Epilepsia 2001.

 

17. Shinnar S, O’Dell C, Mitnick R, Berg AT, Moshe SL. Neuroimaging abnormalities in children with an apparent first unprovoked seizure. Epilepsy Research 2001; 43:261-269.

 

18. Lightstone L, Shinnar S, Callahan C, O’Dell C, Moshe SL, Ballaban-Gil K. Reasons for failure of the ketogenic diet. Journal Neurosc. Nrsg. 2001; 33:292-295.

 

19. Freeman K, O’Dell C, Meola C. Focus group methodology for patients, parents and siblings. J Ped Onc Nrsg; 2001 Nov Dec 18(6):276-86.

 

20. O’Dell C, Shinnar S. Initiation and discontinuation of antiepileptic drugs. Neurologic Clinics 2001; 19:289-311.

 

21. Freeman K, O’Dell C, Meola C. Childhood brain tumors: Children’s and siblings’ concerns regarding the diagnosis and phase of illness. J Ped Onc Nrsg; 2003 May-June 20(3):133-140.

 

22. Freeman K, O’Dell C, Meola C. Childhood brain tumors: Parental concerns and stressors by phase of illness. J Ped Onc Nrsg; 2004 March-April 21(2):87-96.

 

23. Shinnar S, O’Dell C. Febrile seizures. Pediatric Annals   2004; 33:394-401.

 

24. Shinnar S, O’Dell C, Berg A. Mortality following a first unprovoked seizure in children: A prospective study. Neurology; 2005:64:880-882.

 

25. O’Dell C, Shinnar S, Ballaban-Gil K, Hornick M, Sigalova M, Kang H and Moshe SL.  Rectal diazepam gel in the home management of seizures in children. Pediatric Neurology 2005:33, 3:166-172.

 

26. O’Dell C, O’Hara K, Kiel S and McCullough K. Emergency management of seizures in the school setting. J of School Nrsg 2007:158-165.

 

27. O’Dell C, O’Hara K. School nurses’ experience with administration of rectal diazepam gel for seizures. J of School Nrsg 2007:166-169.

 

28. O’Dell C, Wheless J, Cloyd J. The personal and financial impact of repetitive or prolonged seizures on the patient and family. J of Child Neuro 2007:22(suppl):61S-70S.

 

29. Shinnar S, Hesdorffer DC, Nordli DR Jr, Pellock JM, O’Dell C, Lewis DV, Frank LM, Moshe SL, Epstein LG, Maramarou A, Bagiella E and the FEBSTAT study team. Phenomenology of Prolonged Febrile Seizures: Results of the FEBSTAT study. Neurology 2008; 71: 170-176.

 

30. Pellock JM, Hrachovy R, Shinnar S, Baram TZ, Bettis D, Dlugos DJ, Gaillard WD, Gibson PA, Holmes GL, Nordl DR, O'Dell C, Shields WD, Trevathan E, Wheless JW. Infantile spasms: a U.S. consensus report. Epilepsia. 2010 Oct; 51(10):2175-89.

 

31. Sogawa Y, Masur D, O’Dell C, Moshe SL, Shinnar S. Cognitive outcomes in children who present with a  first unprovoked seizure. Epilepsia 2010:1-8.

32. Frank LM, Shinnar S, Hesdorffer DC, Shinnar RC, Pellock JM, Gallentine W, Nordli DR, Epstein LG, Moshe SL, Lewis DV, Sun S and the FEBSTAT study team. Cerebrospinal Fluid Findings in Children with Febrile Status Epilepticus: results of the consequences of prolonged febrile seizures (FEBSTAT) study. J Pediatr. 2012 Dec 161(6):1169-71.

33. Nordli DR Jr, Moshé SL, Shinnar S, Hesdorffer DC, Sogawa Y, Pellock JM, Lewis DV, Frank LM, Shinnar RC, Sun S; FEBSTAT Study Team. Acute EEG findings in children with febrile status epilepticus: results of the FEBSTAT study. Neurology 2012 Nov 27; 79(22):2180-6.

 

34. Epstein LG, Shlomo S. Hesdorffer DC, Nordli DR, Hamidullah A, Benn EK, Pellock JM, Frank LM, Lewis DV, Moshe SL, Shinnar RC,  Sun S; FEBSTAT study team. Human Herpesvirus 6 and 7 in Febrile Status Epilepticus: The FEBSTAT study.

Epilepsia. 2012 Sep; 53(9):1481-8.

 

35. Hesdorffer DC, Shinnar S, Lewis DV, Moshé SL, Nordli DR Jr, Pellock JM, MacFall J, Shinnar RC, Masur D, Frank LM, Epstein LG, Litherland C, Seinfeld S, Bello JA, Chan S, Bagiella E, Sun S; FEBSTAT study team. Design and phenomenology of the FEBSTAT study. Epilepsia. 2012 Sep; 53(9):1471-80. 

 

36. Shafer PO, Buelow JM, Noe K, Shinnar R, Dewar S, Levisohn PM, Dean P, Ficker D, Pugh MJ, Barkley GL. A consensus-based approach to patient safety in epilepsy monitoring units: recommendations for preferred practices. Epilepsy Behav 2012 Nov; 25(3):449-56.

 

37. Shinnar S, Bello JA, Chan S, Hesdorffer DC, Lewis DV, MacFall J, Pellock JM, Nordli DR, Frank LM, Moshe SL, Gomes W, Shinnar RC, Sun S; FEBSTAT Study Team. MRI abnormalities following febrile status epilepticus in children: the FEBSTAT study.
Neurology. 2012 Aug 28; 79(9):871-7.

 

38. Wheless JW, Gibson PA, Rosbeck KL, Hardin M, O'Dell C, Whittemore V, Pellock JM. Infantile spasms (West syndrome): update and resources for pediatricians and providers to share with parents. BMC Pediatr. 2012 Jul 25;12:108.

 

 

39. Hesdorffer DC, Shinnar S, Lewis DV, Nordli DR Jr, Pellock JM, Moshé SL, Shinnar RC, Litherland C, Bagiella E, Frank LM, Bello JA, Chan S, Masur D, Macfall J, Sun S; Consequences of Prolonged Febrile Seizures in Childhood (FEBSTAT) Study Team.

Risk factors for febrile status epilepticus: a case-control study. J Pediatr. 2013 Oct; 163(4):1147-51.

 

40. Masur D, Shinnar S, Cnaan A, Shinnar RC, Clark P, Wang J, Weiss EF, Hirtz DG, Glauser TA; Childhood Absence Epilepsy Study Group. Pretreatment cognitive deficits and treatment effects on attention in childhood absence epilepsy.  Neurology 2013 Oct 29; 81(18):1572-80.

 

41. Lewis DV, Shinnar S, Hesdorffer DC, Bagiella E, Bello JA, Chan S, Xu Y, MacFall J, Gomes WA, Moshe SL, Mathern GW, Pellock JM, Nordli DR, Frank LM, Provenzale J, Shinnar RC, Epstein LG, Masur D, Litherland C, Sun S; FEBSTAT Study Team. Hippocampal sclerosis after febrile status epilepticus: results of the FEBSTAT study. Ann Neurol. 2014 Feb: 75(2):178-85.

 

42. Seinfeld S, Shinnar S, Sun S, Hesdorffer D, Deng X, Shinnar R, O'Hara K, Nordli DR Jr, Frank LM, Gallentine W, Moshé SL and Pellock JM, FEBSTAT study team. Emergency management of febrile status epilepticus: Results of the FEBSTAT study.
Epilepsia 2014 Mar 55(3):388-95.

 

43. Chan S1, Bello JA2, Shinnar S3, Hesdorffer DC4, Lewis DV5, MacFall J6, Shinnar RC3, Gomes W2, Litherland C4, Xu Y5, Nordli DR7, Pellock JM8, Frank LM9,Moshé SL3, Sun S10; FEBSTAT Study Team. Hippocampal Malrotation Is Associated With Prolonged Febrile Seizures: Results of the FEBSTAT Study. Am J Roentgenol. 2015 Nov; 205(5):1068-74.

 

44. Buelow JM, Shafer P, Shinnar R, Austin J, Dewar S, Long L, O'Hara K, Santilli N Perspectives on seizure clusters: Gaps in lexicon, awareness, and treatment. Epilepsy Behav. 2016 Feb 20; 57 (Pt A):16-22.

 

45. Hesdorffer DC, Shinnar S, Lax DN, Pellock JM, Nordli DR Jr, Seinfeld S, Gallentine W, Frank LM, Lewis DV, Shinnar RC, Bello JA, Chan S, Epstein LG, Moshé SL, Liu B, Sun S; FEBSTAT study team. Risk factors for subsequent febrile seizures in the FEBSTAT study. Epilepsia. 2016 Jul;57(7):1042-7. doi: 10.1111/epi.13418. Epub 2016 Jun 6.

 

 

46. Djukic A, Holtzer R, Shinnar S, Muzumdar H, Rose SA, Mowrey W, Galanopoulou AS, Shinnar R, Jankowski JJ, Feldman JF, Pillai S, Moshé SL. Pharmacologic Treatment of Rett Syndrome With Glatiramer Acetate. Pediatr Neurol. 2016 Aug; 61:51-7.

 

47. McClelland AC, Gomes WA, Shinnar S, Hesdorffer DC, Bagiella E, Lewis DV, Bello JA, Chan S, MacFall J, Chen M, Pellock JM, Nordli DR Jr, Frank LM, Moshé SL, Shinnar RC, Sun S; FEBSTAT Study Team Quantitative Evaluation of Medial Temporal Lobe Morphology in Children with Febrile Status Epilepticus: Results of the FEBSTAT Study. AJNR Am J Neuroradiology 2016 Dec;37(12):2356-2362. Epub 2016 Sep 15.

48. Weiss EF, Masur D, Shinnar S, Hesdorffer DC, Hinton VJ, Bonner M, Rinaldi J, Van de Water V, Culbert J, Shinnar RC, Seinfeld S, Gallentine W, Nordli DR Jr, Frank LM, Epstein L, Moshé SL, Sun S; FEBSTAT study team. Cognitive functioning one month and one year following febrile status epilepticus. Epilepsy Behav. 2016 Nov; 64(Pt A):283-288.

49. Shinnar RC, Shinnar S, Hesdorffer DC, O'Hara K, Conklin T, Cornett KM, Miazga D, Sun S, and the FEBSTAT Study Team. Parental stress, pediatric quality of life, and behavior at baseline and one-year follow-up: Results from the FEBSTAT study. Epilepsy Behav 2017, 69, 9599.

50. Gallentine WB, Shinnar S, Hesdorffer DC, Epstein L, Nordli DR Jr, Lewis DV, Frank LM, Seinfeld S, Shinnar RC, Cornett K, Liu B, Moshé SL, Sun S; FEBSTAT Investigator Team. Plasma cytokines associated with febrile status epilepticus in children: A potential biomarker for acute hippocampal injury. Epilepsia. 2017 Apr 27.

51.Shinnar RC, Shinnar S, Cnaan A, Clark P, Dlugos D, Hirtz DG, Hu F, Liu C, Masur D, Weiss EF, Glauser TA; Childhood Absence Epilepsy Study Group. Pretreatment behavior and subsequent medication effects in childhood absence epilepsy.

Neurology. 2017 Oct 17;89(16):1698-1706. doi: 10.1212/WNL.0000000000004514. Epub 2017 Sep 15.

 

52. Prevos-Morgant M, Leavy Y, Chartrand D, Jurasek L, Osborne Shafer P, Shinnar R, Goodwin M. Benefits of the epilepsy specialist nurses (ESN) role, standardized practices and education around the world. Rev Neurol (Paris). 2019, Jan 22.

 

 

Book Chapters
1. Shinnar S and O’Dell C. Treating Childhood Seizures: When and for How Long? In Childhood Seizures Shinnar S, Amir N, Branski D eds., 1995, 100-110.

 

2. Shinnar S and O’Dell C. Treatment Decisions in Childhood Seizures in Pediatric Epilepsy Diagnosis and Therapy, Dodson WE, Pellock JM, Bourgeois BFD, eds., 2nd edition,2001.

 

3. O’Dell C and Shinnar S. Initiation and Discontinuation of Antiepileptic Drugs in Neurologic Clinics, 2001.

 

4. O’Dell C. What Do We Tell Parents of a Child with Simple or Complex Febrile Seizures? In New Concepts in Febrile Seizures, Baram T and Shinnar S eds., 2002.

 

5.  Haut S, O’Dell C, Shinnar S.  Risk factors for development of epilepsy after a first unprovoked seizure. In  Armazinoglou  A, Hirsch E, Rivlin P, Kahane P eds. Treatment of a First Unprovoked Seizure. Paris, Demos  2007..

 

6. Shinnar S, O’Dell C. Treatment decisions in childhood Seizures. In Pellock JM, Bourgeois BFD, and Dodson WE Eds. Pediatric Epilepsy: Diagnosis and Therapy. 3rd Edition. Demos, NY, NY 2008. pp 403-412.

 

7. Gross Tsur V, O’Dell C, Shinnar S. Initiation and Discontinuation of Antiepileptic Drugs in The Treatment of Epilepsy Principles and Practice, Wyllie E, Gupta A,
Lachhwani D, eds., 5th edition, 2011, 527 -539

 


Selected Abstracts

1. O’Dell, C. “Factors Related to the Functional Ability of Patients with Cerebrovascular Accident” Presented at Association of Rehabilitation Nurses National Meeting,
Cincinnati, Ohio October 1983.

 

2. O’Dell, C. “Factors Related to the Functional Ability of Patients with Cerebrovascular Accident” Presented at American Association of Neuroscience Nurses, National Meeting, Atlanta, Georgia, April 1985.

 

3. O’Dell, C. “Nursing Care of the Patient with Transsphenoidal Hypophysectomy” Presented at American Association of Neuroscience Nurses Annual Meeting, Denver,
Colorado, 1986.

 

4. Kongable, G. and O’Dell, C. “A Dose Escalation Study of Intravenous Nicardipine in Patients with Recent Subarachnoid Hemorrhage”.  Presented at American Association of
Neuroscience Nurses. National Meeting, Dallas, Texas, April 1987.

 

5. O’Dell, C. “Teaching Employees Breast Self Examination: Factors that may influence practice”. Presented at New York State Nurses Association Annual Convention, Lake
Placid, New York, 1990.

 

6. O’Dell, C., Maloney-Lutz K., Juhre-Colby, C.; Lightstone, L, Canales, N. “Bridging the Life Span in Epilepsy”. Presented at American Association of Neuroscience Nurses, Mid-annual meeting, Newport, Rhode Island, 1992.

 

7. O’Dell C. Juhre-Colby C. Maloney-Lutz K, Ballaban-Gil K, Moshe S, Kang H, and Shinnar S. “Protocol for ACTH Administration in Refractory Childhood Seizures: Educational Strategies.” Epilepsia, 1992; 33 (suppl 3) page 23.

 

8. Lightstone L, O’Dell C, Moshe S, Shinnar S. Social impact of intractable epilepsy in children on the family unit. Epilepsia 1993; 34 (Suppl 6):7.

 

9. Ballaban-Gil K, Shinnar S, Wolf S, Legatt A, Kang H, O’Dell C, Moshe S. Generalized seizures without electrographic correlate in young children. Epilepsia 1993; 34 (Suppl6):100.

 

10. O’Dell C. Utilization of a Theoretical Model in Clinical Practice: Teaching as an Intervention for Adaptation. Epilepsia 993, 34, 6:7.

 

11. O’Dell C, Lightstone L, Moshe S, Shinnar S. Issues related to caring for infants, children, adolescents and adults in a single epilepsy unit. Epilepsia 1993; 34 (Suppl 6):7.

 

12. O’Dell C, Lightstone L. Ballaban-Gil, Kang H, Wyszynski B, Maloney Lutz-K, Moshe SL, Shinnar S. Psychogenic seizures in children and adolescents. Ann Neurol 1994:36; 513.

 

13. Shinnar S, Berg AT, Moshe SL, Kang H, Ballaban-Gil K, O’Dell C, Alemany M, Neustein D, Hauser WA. Long term outcomes of a cohort of children prospectively followed from the time of their first unprovoked seizure Ann Neurol 1994:36; 500

 

14. Shinnar S, Berg AT, Moshe SL, Kang H, Ballaban-Gil K, O’Dell C, Alemany M, Neustein D, Hauser WA. Long term outcomes of children with epilepsy after withdrawal of antiepileptic drugs. Epilepsia 1994; 35 (Suppl 8):34.

 

15. O’Dell C, Ballaban-Gil K, Eisenberg C, Lightstone L, Clements P, Maloney-Lutz K, Kang H, Legatt A, Wyszynski B, Moshe SL, Shinnar S. Characteristics of psychogenic seizures in children and adults. Epilepsia 1994; 35 (Suppl 8):106.

 

16. Lightstone L, O’Dell C, Eisenberg C, Moshe SL, Shinnar S. The impact of intractable epilepsy on marriage: A spouse’s viewpoint. Epilepsia 1994; 35 (Suppl 8):103.

 

17.  O’Dell C, Shinnar S, Eisenberg C, Ballaban-Gil K, Lightstone L, Clements P, Maloney-Lutz K, Kang H, Legatt A, Wyszynski B, Moshe SL. Comparison of outcomes between children and adults with psychogenic seizures. Epilepsia 1995; 36 (Suppl 4):149.

 

18. Shinnar S, Pellock JM, Moshe SL, Maytal J, O’Dell C, Driscoll SM, Fortner CA, Alemany M, Newstein D, DeLorenzo RJ. In whom does status epilepticus occur: Age-related differences in children. Ann Neurol 1995; 38:505.

 

19. Shinnar S, Pellock JM, Berg AT, Moshe SL, Maytal J, O’Dell C,  Driscoll SM, Fortner CA, Alemany M, Newstein D, DeLorenzo RJ. An inception cohort of children with febrile status epilepticus: Cohort characteristics and early outcomes. Epilepsia 1995; 36 (Suppl 4):31.

 

20. O’Dell C, Lightstone L, Shinnar S, Moshe SL, Ballaban-Gil KR, Kang H, Wolf S, Carpay HA, Arts WFM. Quality of life: Perception of parents and children with epilepsy.
Epilepsia 1996; 37 (Suppl 5):4.

 

21. Ballaban-Gil K, Callahan C, O’Dell C, Pappo M, Moshe S, Shinnar S. Complications of the ketogenic diet. Ann Neurol1996; 40:307.

 

22. Shinnar S, Berg AT, Newstein DD, Moshe SL, Kang H, Ballaban Gil KR, O’Dell C, Alemany M, Hauser WA. Predictors of multiple recurrences in a cohort of children prospectively followed from the time of their first unprovoked seizure.
Epilepsia 1996; 37 (Suppl 5):84.

 

23. Ballaban-Gil KR, Callahan CM, O’Dell C, Pappo M, Lightstone L, Moshe SL, Eisenberg C, Cohen J, Shinnar S. The ketogenic diet in the treatment of intractable epilepsy in adults.  Epilepsia1996; 37 (Suppl 5):92.

 

24. Shinnar S, Berg AT, Moshe SL, Kang H, Ballaban-Gil K, O’Dell C, Alemany M, Newstein D, Hauser WA. What happens to children with epilepsy who experience a seizure recurrence after withdrawal of antiepileptic drugs. Ann Neurol
1996; 40:301-302.

 

25. Lightstone L, Callahan C, O’Dell C, Shinnar S, Moshe S, Pappo M, Ballaban-Gil KR. Non-medical reasons for failure of the ketogenic diet.  Epilepsia 1996; 37 (Suppl 5):108.

 

26. Haut SR, Legatt AD, O’Dell C, Moshe SL, Shinnar S. The effect of interseizure interval on seizure lateralization in patients with bilateral foci. Epilepsia 1996; 37 (Suppl

5):122.

 

27. Stowe MT, Choi P, Facchini, Legatt AD, Mitnick R, Eisenberg C, O’Dell C, Moshe SL, Shinnar S, Masur DM.A Comparison of the Selective Reminding Test with the Weschler Scale on Wada Performance. Epilepsia 1996; 37 (Suppl 5):132.

 

28. O’Dell C, Shinnar S, Mitnick R, Berg A., and Moshe S. Neuroimaging abnormalities in children with a first a febrile seizure. Epilepsia 1997; 38, 8:184.

 

29. Shinnar S, Berg AT, Moshe SL, O’Dell C, Shinnar R. How long do seizures last in children with new-onset seizures. Epilepsia 1997; 38 (Supp 8):249.

 

30. O’Dell C, Lightstone L, Shinnar S, Maw M, Moshe S, Carpay H, and Arts WF. Impact of Childhood Seizures on Quality of Life: Perceptions of Parents and Children. Epilepsia
1998, 39, 6:223.

 

31. Shinnar S, O’Dell C, Berg AT.  Epilepsy Syndromes in children identified at the time of their first unprovoked seizure. Epilepsia 1998; 39 (Supp 6):148.

 

32. Haut SR, Shinnar S, Legatt AD, O’Dell C, Moshe SL. The association between clustered seizures and status epilepticus in patients with intractable complex partial seizures. Epilepsia 1998; 39 (Supp 6): 219.

 

  1. Shinnar S, O’Dell C, Maw M, Berg AT. Long term prognosis of children who relapse after withdrawal of antiepileptic drug therapy. Epilepsia 1999; 40 (Supp 7):85-86.

 

  1. O’Dell C, Shinnar S, Ballaban-Gil K, Kang H, Moshe SL. Home use of rectal diazepam gel (Diastat). Epilepsia 2000; 41(Supp7):246.


SELECTED PRESENTATIONS


1. Lecturer.  Neurosurgery Intensive Care Unit, Yale-New Haven Hospital “Spinal Shock”, 1983.

 

2. Lecturer.  Yale University School of Nursing, Research Day Presentation research/thesis, 1984.

 

3. Invited Faculty.  New York University Medical Center, Critical Care Course “Neurophysiology”, 1985.

 

4. Invited Lecturer.  Conference by the Sea, Norfolk, Va. “Factors Related to the Functional Ability of Patients with Cerebrovascular Accident, 1985.

 

5. Invited Faculty, Yale University School of Nursing, Use of the PULSES Profile and Barthel Index in the Clinical Setting”, 1985.

 

6. Invited Lecturer.  New York Chapter Critical Care Nurses Annual Conference, “Intracranial Hemorrhage, 1986.

 

7. Invited Faculty, Mount St. Mary College, Newburgh, New York

“Cerebrovascular Accident”, 1988.

 

8. Invited lecturer, Holy Comforter Nursing Home, Peekskill,

New York, “Depression in the Elderly”, May, 1990.

 

9. Invited lecturer, Veteran’s Administration Medical Center, Bronx, New York, “Neurological Assessment”, March, 1992.

 

10. Invited speaker, Epilepsy Society of Southern New York, Annual Symposium, “Coping with Epilepsy”, November 1993.

 

11. Invited speaker, White Plains Hospital, “Neurological Nursing Research, Education”, March 1994.

 

12. Invited lecturer, North Central Bronx Hospital. Pediatric Emergency Room Physicians Conference, “Pseudoseizures”, May 1995.

 

13. Invited lecturer, North Central Bronx Hospital. Pediatric Grand Rounds, “Pseudoseizures”, June 1995.

 

14.  Invited lecturer, 3-D Neuroanatomy and Practical Applications in the Neurosciences, Sponsored by the Department of Neurological Surgery Albert Einstein College of Medicine and Montefiore Medical Center, “Management
Options for Persons with Epilepsy”, December 1995.

 

15. Lecturer, Association of Child Neurology Nurses, National Meeting, “Status Epilepticus in Children”, Minneapolis, Minn. October 1996.

 

16. Lecturer, American Association of Neuroscience Nurses, Annual Meeting, “Status epilepticus in children and adults: Current management and prognosis”, Norfolk, Virginia, 1996.

 

17. Lecturer, American Association of Neuroscience Nurses, Neuro-oncology Forum, “A Model to Identify Stressors in Families with a Child with a Brain or Spinal Cord Tumor”.
Cleveland, October 1998.

 

18. Lecturer. Association of Child Neurology Nurses. “Quality of Life in epilepsy: Restrictions in daily activities and perceptions of parents and children with seizures”.
Montreal, Canada, October 1998.

 

19. Lecturer. The Epilepsy Institute Symposium. “At home treatment of acute seizures”. New York City, October 25, 1999.

 

20. Lecturer. Association of Child Neurology Nurses. “Focus groups to identify needs of families with a child with a brain or spinal cord tumor.” Nashville, TN, October 1999.

 

21. Invited Speaker. Nurse Teleconsults sponsored by American Epilepsy Society. “Children, AEDs, and Behavioral Issues”1999.

 

22. Lecturer. Recent Advances in Epilepsy. The Epilepsy Institute New York, New York, August 1999.

 

23. Speaker. Epilepsy in the Classroom. The Epilepsy Foundation of New York City. New York, August 2000.

 

24. Speaker. Greater York Chapter, American Association of Neuroscience Nurses. Epilepsy in Children. Blythedale Children’s Hospital, Valhalla, New York, September, 2000.

 

25. Lecturer. Association of Child Neurology Nurses. Home Use of Rectal Diazepam Gel. St. Louis, October 2000.

26. Invited Speaker. Elan Pharmaceuticals. Pediatric Subjects in Drug Studies and the Institutional Review Board. Naples, FL, January 2001.

 

27. Lecturer. American Association of Neuroscience Nurses Annual Meeting, Parental Teaching: Home Use of Rectal Diazepam Gel. San Francisco, April 2001.

 

28. Lecturer. American Association of Neuroscience Nurses Annual Meeting, Treatment of Acute and Repetitive Seizures. Atlanta, April, 2003.

 

29. Invited Speaker. Management of Prolonged Seizures. Broome County Developmental Center, Binghamton, New York, May 2003.

 

30. Lecturer, Coordinator. Association of Child Neurology Nurses Annual Meeting, Research Symposium, Miami, FL, October 2003.

 

31. Invited Speaker. Use of Rectal Diazepam Gel for Acute Treatment of Prolonged and Repetitive Seizures. White Plains Hospital, Pediatric Unit, February 2004.

 

32. Invited Speaker. National Association of School Nurses Annual Meeting, Acute Seizure Management in the School Setting. Seattle, Washington, July 2004.

 

33. Invited Speaker. New York City Police Academy. Seizures and First Aid. New York, New York, February 2005.

 

34. Speaker. American Epilepsy Society Annual Meeting. Safety Symposium, December 2008, Seattle, WA.

 

  1. Speaker. American Epilepsy Society Annual Meeting. Safety Symposium, December 2009, Boston, MA.

 

  1. Coordinator and Speaker. Epilepsy and Developmental Disabilities, Interagency training institute, March 2011, NYC.

 

  1. Speaker, Annual Meeting of the Association of Child Neurology Nurses, Consequences of prolonged febrile seizures in childhood: Baseline findings, Savannah, Georgia, October 2011.

 

  1. Speaker, Lennox-Gastaut Syndrome Foundation, Quality of Life and LGS, Arlington, Virginia, November, 2011.

 

  1. Speaker, Greater New York Chapter Association of Neuroscience Nurses, Safety in the Epilepsy Management Unit, NYC, January 2014.

 

  1. Speaker. School Nurses of New Rochelle, NY, Westchester County. Seizures in the School. May, 2015.

 




             

 

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